The Irish Dystonia Research Group (IDRG) is focused on uncovering the cause, or causes, of adult onset dystonia and increasing our understanding of this disorder. This multidisciplinary team comprises neurologists from the Department of Neurology, St Vincent’s University Hospital, and engineers and scientists from the Neural Engineering laboratory, Trinity College Dublin (with additional national and international collaborators).

The aims of Dystonia Ireland are to promote and encourage scientific research into the causes and treatments of dystonia, raise the level of awareness amongst the general public and the medical profession, offer support and information to all people with dystonia and their families nationwide.

The Dystonia Ireland website contains a wealth of information about dystonia and provides contact details for advice and support.


European Dystonia Federation

Dystonia Europe is a non-profit organisation registered in Belgium and serving the needs of everybody with an interest in dystonia. Dystonia Europe has 20 national member organisations from 17 countries and is representing the interests of more than 500,000 dystonia patients and their families across Europe.

The Dystonia Ireland website contains a wealth of information about dystonia and provides contact details for advice and support.

The mission of the Dystonia Medical Research Foundation (DMRF) is to advance research for more treatments and ultimately a cure, to promote awareness and education, and to support the needs and well being of affected individuals and families.

The Neurological Alliance of Ireland (NAI) is an alliance/umbrella group of voluntary organisations, professionals and other interested parties – together representing the views and concerns of those whose lives are affected by neurological conditions.

The Irish Institute of Clinical Neuroscience (IICN) aims to promote the academic clinical neurosciences in the Republic of Ireland and in Northern Ireland. It organises academic meetings where teaching is carried out and where findings from neuroscience research are presented.

Consultant Neurologists
Information for dystonia patients