Goals DystonieNet

The DystonieNet was founded in January 2010 with the aim of improving national cooperation around cervical dystonia in the areas of patient care, teaching and research. The development of treatment guidelines for the two most important aspects of treatment of cervical dystonia, namely with injections of botulinum toxin and physiotherapy or exercise thearapy, the main purpose of the DystonieNet:

Botulinum treatment guideline

Injections of botulinum toxin is currently proven the best and first choice treatment of cervical dystonia. Many studies have shown that the injection of dystonic muscles with botulinum toxin is effective for the reduction of pain and muscle contractions. How well the treatment catch on, depends on many factors such as a good selection and injection of the affected muscles and setting the proper dosage of botulinum toxin. To make the treatment as effective possible, DystonieNet has in collaboration with the Dutch Society of Neurology developed an evidence-based treatment guideline. The guideline can be downloaded from this website and the website of the Dutch Society of Neurology. There is an application of the guideline for the iPhone, iPad and Android platforms for use in the consulting room. This app is a free download in the Apple App Store and the Google Play Store. 

Physiotherapy / exercise therapy treatment guidelines

In 2011, a standardized treatment program was developed for the treatment of cervical dystonia. This treatment program was developed using the AGREE standards in collaboration with the Royal Dutch Society for Physiotherapy (KNGF), the Association of Exercise therapy Cesar and Mensendieck (VvOCM) and the lectureship exercise therapy of the University of Amsterdam. Due to the limited evidence of physiotherapy / exercise therapy for cervical dystonia there currently is a study to develop at the (cost) effectiveness of the treatment program. If the treatment program appears to be effective then it will be implemented nationwide as a guide. This is expected to be in 2017.

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